Happy New Year
from our family to yours. May our Heavenly Father be with each of you in 2017
and grant you His blessings.
In this past
week, Jodi was finally able to go into the NICU on Wednesday and Nathan on
Friday. We were emotional and amazed to see the changes that had occurred in
the 7-9 days we hadn't seen them. It's incredible how growing a few ounces can make
such a difference in such tiny babies.
Liam:
On Monday, Liam
was showing signs of infection yet again. Tests showed that he had pneumonia.
This is most likely from the breathing tube. The doctors have mentioned a
number of times that the breathing tube as well as IV lines and other
"foreign objects" going into our babies are all potential sources of
infection and so it was not a huge surprise to them when Liam contracted this
lung infection. He immediately started a specific antibiotic for the pneumonia.
Liam also had a few other symptoms such as diarrhea that led to more testing
and being put into isolation for a few days but all of the tests came back
negative. We are thankful that he seems to be pretty well over the infection
although he has a little while longer yet on antibiotics. We are fervently
praying that he does not get sick again but can stay well so that he can go for
his heart surgery on the PDA if he still needs it. He will be reassessed this
week to see if surgery is still needed, and if it is then the surgery will
likely happen this week.
Liam has been
growing well overall and is still our biggest baby. He likes to try and look at
whoever is speaking around him and tries hard to focus. At this stage, the
triplets cannot see very well and cannot even see colour but he sure is trying
hard!
Taylor:
Our baby girl is
finally past the 3 pound mark! We had a pleasant surprise this week when Taylor
was switched to the lowest form of CPAP and did very well. This form of CPAP
does not give Taylor any breaths. The only thing it does is put some air
pressure into her lungs to keep them inflated a bit. This is so that she
doesn't have to work quite so hard to take in each breath. The pressure that
she is being given can be weaned down a bit before she can graduate to the next
form of breathing support which would no longer be a mask. While this will be
the eventual goal, the doctors will not push Taylor to the next stage but will
keep her here for a while. She is where she should be for her gestational age
(33 weeks tomorrow). For now, she needs to stay on this breathing support, stay
warm, take in lots of breast milk, and just grow, grow, grow! At around 34-36
weeks, babies are typically ready to start feeding orally, but they need to be
off of all breathing support before they can start. This will be the next goal
in conjunction with lowering the breathing support once Taylor seems ready.
While all this makes us excited and optimistic, the doctors have warned us
that: a) Taylor likely will go "backwards" a number of times and need
more breathing support for various reasons and b) premature babies often have a
hard time learning how to orally feed for a number of reasons as well. These
reasons include getting tired easily, not knowing how to suck, swallow, and
breathe at the same time, and not liking anything in their mouth because they
think it will hurt (at this point they have had many painful or uncomfortable
medical interventions in their mouths like breathing tubes, suctioning of
secretions, feeding tubes, etc.) Time will tell how each of our little ones
will do!
Malachi:
Our youngest
triplet has been staying the same in the last week aside from some issues with
low sodium levels. However, the doctors started noticing that his oxygen
support levels were slowly being increased. They began to express this concern
to us and started discussions about a third round of a higher and longer dose
of steroids. After much discussion and prayer we decided to start the steroids
on Saturday. The hope is that in around 5 days, Malachi will be able to come
off the breathing tube and put on a form of CPAP. We pray that the steroids
will have this desired effect! However, steroids have a lot of potential risks
or side effects. Of particular concern is the risk of problems with brain
development. We know that each of our triplets are at risk for a lot of
different issues with development such as difficulties learning, difficulties
with muscle development or stiffness (cerebral palsy), and other developmental
issues. These issues will begin to manifest as the triplets get older and they
are simply because they were born way too early. With Malachi, however,
the risks are significantly higher because of the steroids. With both Liam and
Malachi, the risks are also significantly higher because they have been
intubated and on a high amount of breathing support for so long. Again, time
will tell!
Malachi often smiles in his sleep.
As parents, we
don't want to dwell on whether or not each of our triplets will have
developmental issues in the future because we want to love them and enjoy them
in each moment, rather than worry about the future. At the same time, we need
to be prepared so that we can care for each of our litttle ones with their
specific needs. As we move into this new week and this new year, we take
comfort in Psalm 46:1 which says, "God is our refuge and strength, a very
present help in trouble."
❤❤❤ so glad you got better! You are so right to not worry about the future. Best to react to the challenges than try to guess what they might be. God bless you all.... try to imagine new years 2017 �� DV. a.jane
ReplyDelete❤❤❤ so glad you got better! You are so right to not worry about the future. Best to react to the challenges than try to guess what they might be. God bless you all.... try to imagine new years 2017 �� DV. a.jane
ReplyDeleteSo glad you were able to see your little ones again. Praying for you all as you take life day by day and hour by hour.
ReplyDeleteWishing you and your family the Lord's blessing in this New Year. May God continue to bless each of you.
ReplyDeleteS happy to hear that you as parents are feeling better again. We pray for you and your little ones regularly and we wish you much strength and Peace from above in this coming year. We know who holds the future.<3
ReplyDeleteStill keeping you all in our prayers! Indeed, may you live only day by day, receiving each moment from God's Hand. "Great is Thy faithfulness! Morning by morning new mercies I see; all I have needed thy hand hath provided. Great is thy faithfulness, Lord, unto me!" In the coming ups and downs, may you rest in His faithfulness.
ReplyDelete