Maybe we have said
it more than once, but we never know what the day will bring in the NICU!
Liam Josiah:
After hearing about
how Liam's lung disease was significantly impacting him last week, we were
extremely surprised to come into the NICU on Friday and hear that the plan was
to extubate our oldest baby boy. The doctors and respiratory therapists
explained that they wanted to give CPAP a try even though there was a
possibility that Liam was maybe not quite ready. "The baby is the
boss" is the saying we have heard more than once. Liam would show us if he
was ready or not. So at 2 in the afternoon they took his tube out and put him
on CPAP. After 20 hours of repositioning his little body and changing many
different settings on the ventilator, Liam was reintubated. Although we were
disappointed, we were happy that physically appeared well throughout it all. We
are back to square one and the doctors have given Liam a few days to rest
before a new plan is drafted. The healthcare professionals will decide whether
Liam's PDA needs to be surgically fixed or whether a round of steroids might be
an option. While they are the professionals, as parents we also have to weigh
in on the decisions and give our consent. This is because of all the risks that
either option entails. Right now, they are leaning heavily towards heart
surgery within the coming week.
On Sunday, Jodi finally
had a successful snuggle with our precious baby boy. He continues to grow well.
Taylor Joy:
Our little sweetie
continues to do well. Her oxygen levels hover in the 20s (remember that 21% is
what you and I are breathing). She has been having more of the pressures and
settings weaned down as well. It's still a ways in the future, but after CPAP
there are still a few other forms of breathing support that babies generally
still need.
Taylor has also
been giving her parents some great cuddles lately. She is still the smallest
but growing well!
Malachi John:
As you may recall,
Malachi started his second round of steroids to improve his lungs this past
week. As of Monday night, he is nearly finished the steroids. While he is
nowhere near coming off his breathing tube, he has definitely improved from the
steroids. As parents we were disappointed that he was not near being extubated
but the healthcare team assured us that the steroids improved Malachi's lungs
pretty much as they were expecting. We will be meeting with the doctors in the
next few days to decide on what the next steps for Malachi might be. We are
very hesitant to put him on a third dose of steroids but there are not many
options for our little man in terms of interventions that can improve his
lungs.
In the meantime,
coming off of his steroids will hopefully mean that Malachi can start to grow
more quickly again. Growing bigger for all of our triplets means developing and
getting stronger because their breast milk is being fortified with lots of good
stuff like protein, vitamins, and minerals to help them develop. We love to
watch them and see the changes in each of our babies. Looking back on the
pictures of their sticky red skin and bony little bodies, we are thankful to
see the improvements they have made so far.
We want to again
express our thanks to everyone for their cards, emails, texts, messages, care
packages, and comments. We feel so uplifted by the communion of saints.
Romans 15:13:
"May the God of hope fill you with all joy and peace in believing, so that
by the power of the Holy Spirit you may abound in hope."
<3<3<3 keep up the good work, mom and dad! God bless!
ReplyDeleteOnly the first time I am writing but we have been anxiously following your blog all along. Praying so often for them and for you their Mommy and Daddy! May God grant you both strength and an extra measure of His love and nearness. He is their loving shepherd.... precious little lambs! Jack, Linda and Sara Vanderhorst
ReplyDeleteThis comment has been removed by the author.
ReplyDeleteLove the updates and the photos!
ReplyDeleteSo nice to read these updates! We are still always thinking of and praying for all of you!May God continue to give whatever is needed to face each new day! God bless! Jon and Sharon Kingma
ReplyDeleteWe continue to uphold you both but especially those three precious little babes in our prayers. Our youngest too sends her prayers for them as well as you. Thanks for keeping updated....we pray that God may continue to bless the doctors hands, grant you both strength and comfort as you face each day anew and that He continues to allow them the growth and strength that He has already graciously granted so for. God bless you all! Arnold, Patti Mans and girls
ReplyDeleteYou are always in our prayers and thoughts.. Last evening we read Psalm 139 again..Our God was there when your babies were first conceived and He is keeping watch today and each and every day.. You are being strengthened in your faith while you walk this road. You know that leaning on Him will get you through each day.. stay strong in Him.love, Andy and Tina vanyken
ReplyDeleteYour babies are so beautiful and are definitely changing as they mature. We know that you are being carried - that the Lord is giving you strength and endurance with all of the ups and downs. What a blessing to have the support of the staff every moment with each little one. Our prayers for you continue to be lifted up.
ReplyDeleteLoving Shepherd of Thy sheep,
ReplyDeleteAl Thy lambs in safety keep,
Nothing can Thy power withstand,
Non can pluck them from Thy hand.
Hymn 56:1
Thanks for another update. We continue to remember all of you in our prayers.
Loving Shepherd of Thy sheep,
ReplyDeleteAl Thy lambs in safety keep,
Nothing can Thy power withstand,
Non can pluck them from Thy hand.
Hymn 56:1
Thanks for another update. We continue to remember all of you in our prayers.